On the map below, click on a country's pin to see more information about award-winning projects from that country!

Austria

Organisation:

 Aktion Demenz Voralberg – Gesellschaft für Gesundheit und Pflege – gGmbH

Project description:

Campaign Dementia aims to create conditions in Vorarlberg that enable people with dementia to participate in public and social life. We support communities that wish to create a friendlier environment for people with dementia and their families. 23 model communities (out of 96, and almost 60% of the inhabitants of Vorarlberg) have joined us since 2008. Countrywide, we also want to sensitize the general public and increase awareness of dementia by informing (e.g. through press relations and conferences, brochures, events, movies, art exhibitions, lessons in schools and kindergarten) and educating (e.g. neighbourhood assistants, policemen, salespeople, bus drivers, bank employees).

Contact:

https://www.aktion-demenz.at/startseite/

https://www.efid.info/wp-content/uploads/2016/03/Aktion-Demenz_Austria2.jpg

Organisation:

 Institute for Palliative Care and Organisational Ethics

Project description:

The project “Dementia-friendly community pharmacy” aims at increasing quality of life for people with dementia and their caregivers by empowering community pharmacies to become more dementia-friendly through using their resources as local shops and by increasing knowledge and skills in person-centered care, and by reducing stigma through developing awareness-raising initiatives in local communities. Following principles of participatory research, involving caregivers and people with dementia is one major goal as is working in cooperation with Alzheimer Austria, a self help group, the Austrian Chamber of Pharmacists, and with other partners from palliative care and health promotion in Vienna and Lower Austria.

The project received a "special nomination" in 2014.

Contact:

Petra Plunger petra.plunger[at]aau.at

https://www.efid.info/wp-content/uploads/2016/03/DFC-Pharmacy.jpg
Belgium

Organisation:

 OCMW Kortrijk

Project description:

The main purpose is to integrate elderly with dementia in the daily life and the local community. Through a Reminiscence Promenade the project is about creating reminiscence work, intergenerational work, improvement of accessibility and mobility and integration into village life (de-stigmatization).
The project consists of walks with references of events that happened in the past.

Contact:

Jan Goddaer jan.goddaer[at]ocmwkortrijk.be

https://www.efid.info/wp-content/uploads/2016/03/Reminiscence-Promenade-photo.png

Organisation:

 Het Ventiel

Project description:

The objective of the project ‘Het Ventiel’, funded in 2015, is to encourage people with young onset dementia to break free from their isolation and engage in activities in a social context together with a buddy, who is also a volunteer. We look for new challenges and interesting alternatives to what is no longer possible. New challenges give new energy, confidence and self-esteem. People with young onset dementia can meet each other in an informal, casual atmosphere and find quality of life by discovering new activities. The condition has a significant financial impact on the families, so to make the project accessible to everyone, everything is free for the participants. The project also gives the partners of people with young onset dementia some breathing space and offers them the understanding of other partners going through the same experience.

Contact:

http://www.hetventiel.be/ or www.facebook.com/Het-Ventiel-874598159247257

https://www.efid.info/wp-content/uploads/2018/02/MG_8086.jpg

Organisation:

 HEKLA Local police force

Project description:

This project is a bottom-up initiative that started in 2006 with the aim of dealing better with people with dementia who get lost in the community. The local police service covering 5 local authority areas (HEKLA) took responsibility for the project and brought together all the relevant community-based parties, including nursing homes and hospitals. They signed a joint protocol that aims to provide an efficient procedure for dealing with disappearances of people with dementia and youngsters.

As time is crucial in finding and returning these vulnerable people safely, the partners agreed to actively support professional communication with the local police service. This involves providing fast access to a well-documented file on the missing person, including personal details and information about the ‘last point seen’. Since the implementation of these optimized communication procedures, missing people are now located in less than 2 hours on average.
The project has already been adopted by eight other local police services in Belgium.

Contact:

www.hekla.be/zdiensten/vermist/

https://www.efid.info/wp-content/uploads/2016/03/Hekla-3.jpg

Organisation:

 Expertisecentrum Dementie Foton

Project description:

A long-term awareness-building project in which all relevant partners, such as healthcare services, socio-cultural associations, local businesses (e.g. restaurants, shopkeepers), educational organizations, public and private services (e.g. police), are invited to make an active contribution, both individually and through partnerships, to creating a dementia-friendly community. The project aims to infiltrate the city and all its structures in order to create a climate where dementia is borne by the entire community. Examples of initiatives undertaken include the creation of a website, the wide distribution of a free ‘dementia guide’, organization of basic workshops on dementia and a protocol for finding missing persons.

Contact:

www.familiezorg-wvl.be/foton.aspx

https://www.efid.info/wp-content/uploads/2016/03/DSC03909.jpg
Bulgaria

Organisation:

 Foundation Compassion Alzheimer Bulgaria

Project description:

The twinning programme of Alzheimer’s Disease International is a programme that provides support for core activities of ADI members. Thanks to 3-year twinning grants, Foundation Compassion Alzheimer Bulgaria achieved the following: 1) implementation of a strategic plan to develop the organization, 2) capacity building and training of the team and volunteers, 3) opening of a representation office in Sofia, 4) the design and provision of innovative social services for families of people with Alzheimer’s in Sofia and Varna (centres for support and psychological and legal consultations), 5) self-help groups, 6) an Alzheimer’s café, 7) annual information and lobbying campaigns.

Contact:

compassion.alz[at]abv.bg

https://www.efid.info/wp-content/uploads/2016/03/Compassion-Alz-Bulgaria.jpg
Cyprus

Organisation:

 Ske Simplegmatos Kouri Ksilourikou

Project description:

There is an urgent need for improving the awareness and understanding of dementia across society in order to enhance the quality of life for people with dementia and their caregivers. The Cyprus organization has been struggling for several years to offer people with dementia an independent and active life. The project idea is to run an awareness-raising campaign in order to promote a dementia friendly society, to change public attitudes and practices in society.

Contact:

skekouriksylourikou[at]hotmail.com

https://www.efid.info/wp-content/uploads/2016/03/Act-and-React-4-dementia_Cyprus.jpg
France

Organisation:

 Bistrot Mémoire, France

Project description:

Bistrot Mémoire creates a special environment where people with dementia are able to express themselves whilst still being part of the community. The Jury was convinced by the approach and the mission of the project as well as by the success of the concept. It has spread rapidly throughout France without losing any of the project’s original quality or its mission.

The first Bistrot Mémoire was set up in Rennes in January 2004. Since then, the concept has been implemented in a further 41 communities in France. The idea was jointly developed by a group of institutions and volunteers. Later, a board of governors was appointed which included people with dementia as well as carers.
The Bistrot Mémoire is located in a popular bistrot in the city and welcomes people with dementia and their carers once a week. In Rennes, some 25 people attend each week, including both professionals and volunteers.
The Bistrot Mémoire is a place where people share feelings and experience and develop social ties. It is not an information centre, even though information is given.
The mission is to provide a pleasant location for people with dementia, develop tolerance, change the public’s views about dementia, support carers, prevent crises in the family network and change professional practice.

Contact:

Isabelle Donnio. Email: isadonnio[at]numericable.fr

https://www.efid.info/wp-content/uploads/2016/01/bistrot-memoire-newsletter.png

Organisation:

 France Alzheimer Vaucluse and Alzheimer Gesellschaft München e.V.

Project description:

«Meeting without Boundaries» is a programme created in 2011 by 2 associations sharing the same ethics in dealing with people living with dementia: France Alzheimer Vaucluse (France) and Alzheimer Gesellschaft München e.V (Germany). A common pursuit: promoting a more inclusive society while discarding the prevailing negative stigma around dementia. The involvement of people living with dementia in all stages of the project’s elaboration and development was as high as that of relatives, volunteers and professionals. They shared their experience as individuals, as citizens and as European partners, which led to opening up the project to a European scale.

Contact:

https://www.francealzheimer84.fr/ and https://www.agm-online.de/agm-home.html

https://www.efid.info/wp-content/uploads/2018/02/MG_8213.jpg
Germany

Organisation:

 Leben mit Demenz – Alzheimergesellschaft Kreis Minden – Lübbecke e.V

Project description:

In the past decade, various means of support have been established for people with dementia and their families in the region (e.g. specialized dementia service centres, respite care, day care, carer support groups). However, until this project was set up, no programmes existed explicitly for people in the early stages of dementia. The project consists of bi-weekly support groups, a sports programme and a monthly activity programme. In order to facilitate participation by those with dementia, a network of volunteers has been created. All the volunteers have either a professional background in dementia care or have been trained specifically for the task.

The jury selected this project for an award because it demonstrates an innovative approach in offering bi-weekly support and a sports programme for people in early-stage dementia. This kind of support programme with a network of volunteers is a very good example how we can improve the quality of life of people with dementia.

Contact:

http://www.leben-mit-demenz.de/

https://www.efid.info/wp-content/uploads/2016/03/Leben-mit-Demenz_GE.jpg

Organisation:

 Nachbarschaftliche Unterstützung und Zeitvorsorge (NUZ) e.V.

Project description:

The community is stimulated through public awareness, political activism. Regular meetings and joint actions are organized to enable a space for networking of the boroughs with the professional service providers. The aim of the project is to enable people with dementia to remain in their homes for as long as possible. People with dementia and their family carers are supported through neighborhood assistance, organized and implemented by the Association of NUZ. Moreover, training and support are provided to citizens who are willing to engage themselves in the neighborhood assistance on a voluntary basis and against time credit, especially for people with dementia.

Contact:

Veronika Rist Grundner v.rist-grundner[at]allgaeu.org

https://www.efid.info/wp-content/uploads/2016/03/NUZ_logo.jpg

Organisation:

 KONFETTI IM KOPF e.V.

Project description:

The project develops events and activities to bring together people with and without dementia in their local community. In using music, visual arts, theatre and humor they create meeting spaces, where people connect and gain new perspectives through social contact and information. The project puts emphasis on building a network of local institutions dealing with dementia care. There is a plan to establish a Music & Arts Studio, where music and art therapists encourage people with and without dementia of all ages and background to experience the fun of creating and a gain of self-esteem.

Contact:

www.konfetti-im-kopf.de

https://www.efid.info/wp-content/uploads/2016/01/Konfetti_logo.png

Organisation:

 Demenz Support Stuttgart (Dess)

Project description:

Demenz Support Stuttgart (Dess) was established in 2002 with the intention to improve participation, self-determination and quality of life for people with dementia. The project “KuKuK-TV – Participation, Self-determination and quality of life” is a YouTube channel that gives voice to people living with dementia. It’s a platform that allows people with the condition to communicate their views on life and be active and creative on their own behalf. The programme features among other things reports, portraits, interviews and discussions.

Contact:

More information on www.youtube.de/c/KuKuK-TV or www.kukuk-tv.de

https://www.efid.info/wp-content/uploads/2018/02/MG_8003.jpg

Organisation:

 City of Arnsberg

Project description:

The city’s staff unit “Future of Ageing” is coordinating and moderating the process of evolving Arnsberg towards a city of long and good life. The “Learn-Lab Dementia” is about establishing networks of “professionals” (medicine, nursing, etc) and civil society partners (kindergartens, schools, cultural and economical institutions, etc.) sharing the aim to improve the quality of life of people with dementia and their relatives.

Contact:

Martin Polenz - m.polenz[at]arnsberg.de

https://www.efid.info/wp-content/uploads/2016/03/Learning-Lab-Demetia_city-of-Arnsberg_Ge.jpg

Organisation:

 Generationen Treff Enger, Germany

Project description:

Learning with and from each other in order to deal with each other is what some of the senior experts intended for this project. This guiding principle set out to strengthen the various networks in the town of Enger and to offer young and elderly people the possibility of taking part in social development. This project enables people with dementia to actively participate in life and to come into contact with people without dementia. Such a project was only possible in the town of Enger with the support of the local community, its shopkeepers and the local authority.

Dementia brings with it isolation and rejection. To remedy this, Generationen Treff Enger offers people with dementia the opportunity to meet with other members of the town through a range of activities. This initiative, whichappears so simple, draws its success from the involvement of many actors. It also stimulates profound changes in the way people with dementia are regarded

Contact:

Günter Niermann Gniermann2[at]teleos-web.de

https://www.efid.info/wp-content/uploads/2016/01/logogte.jpg
Ireland

Organisation:

 The Alzheimer Society of Ireland

Project description:

The Alzheimer Society of Ireland works across the country in the heart of local communities providing dementia specific services and supports and advocating for the rights and needs of all people living with dementia and their carers. The Alzheimer Society of Ireland (ASI) established the Irish Dementia Working Group (IDWG) in early 2013. The IDWG is a national advocacy group made up of people with dementia. The IDWG wish to run an advocacy campaign in 2018 “Forget the Stigma of Dementia – Learn Listen Link”. The campaign is an opportunity for the IDWG to engage in local advocacy work through their national and regional groups, while also raising public awareness about dementia. The members of the IDWG will take responsibility for the planning, development, delivery and content of the campaign, ensuring the voice of people with dementia is at the centre.

Contact:

http://www.alzheimer.ie

https://www.efid.info/wp-content/uploads/2018/02/MG_8018.jpg

Organisation:

 Crystal Project

Project description:

The aim of this project is to create a dementia friendly community in Mallow by providing support for staff of local businesses, schools, and healthcare professionals etc., to be aware of the needs of those affected by dementia. Through awareness campaigns, dementia champions support-programmes, and open access to the Memory Resource Room, the public will be better placed to understand the needs of those affected by dementia.

Contact:

Cormac Sheehan cormac.sheehan[at]ucc.ie www.crystalproject.ie

https://www.efid.info/wp-content/uploads/2016/03/Crystal-Project_EFIDaward.jpg

Organisation:

 St James's Hospital

Project description:

St James's Hospital in Dublin has been in existence since 1727. St James's Hospital, Dublin are involved in a large initiative 'DemPath' and within this undertook a project to improve the experiences of people with dementia within the hospital setting. The project “Wayfinding for people with dementia in a Dublin hospital” included making environment changes to make it more dementia-inclusive. This has covered a number of different areas including improved wayfinding. A wayfinding audit was undertaken involving people with dementia and all found the environment confusing but highlighted specific changes. Drawing on best practice examples environmental cues, including specially designed signage, have been introduced to help orientate people within a new building on the hospital campus. The aim is to extend this exemplar to key parts of the acute hospital.

Contact:

https://www.efid.info/wp-content/uploads/2018/02/MG_8324.jpg
Italy

Organisation:

 Associazione per la Ricerca Neurogenetica o.n.l.u.s.

Project description:

Alzal House is a community day-care home for people with Alzheimer’s disease and their families, situated in Lamezia Terme, Calabria, in the very south of Italy. It opened in 2002 as the first adult care home in Lamezia Terme and today offers a wide range of activities such as handicrafts, self-management activities, organized day trips and short vacations, as well as group meetings and support for families.

The daily running of Alzal House is purposely shared with families, young civil service volunteers and students to encourage the dissemination of good social practices and assistance within the community. Encouraging the participation of people from all age groups fosters effective intergenerational communication – between young people, adults and the elderly – and narrows the generation gap, whilst ensuring stronger integration of the patient in the community.

Contact:

http://www.arn.it/it/cosa-facciamo/casa-azal

https://www.efid.info/wp-content/uploads/2016/03/11058792_277990319038352_5072240683230250859_n.jpg

Organisation:

 Associazione Novilunio

Project description:

Founded in 2014, Novilunio is a non-profit association dedicated to inspiring a culture of positive change based on dignity and empowerment of individuals living with dementia and their carers. In 2017, Novilunio launched four online peer support groups for care partners of people with dementia (i.e. frontotemporal, Lewy body, Alzheimer’s and vascular). Encouraged by this positive experience, the association is now working on the launch of the first online network of peer support groups exclusively dedicated to Italians living with dementia. The group participants will convene from across the country in video chat rooms to exchange personal stories, tips and advice, as well as mutual support to better cope with their life changes and live a good quality of life beyond their diagnosis. To this end, the members of the first pilot group will meet on a weekly basis with the support of two Novilunio’s advisors who will facilitate their interactions, empower their viewpoints, and assist in case of any issue affecting their participation. The first pilot group will also define the guidelines that will be shaping the values and operations of future peer support groups dedicated to specific types of dementia, which will be launched starting from the second half of 2018.

Contact:

https:/
ovilunio.net/

https://www.efid.info/wp-content/uploads/2018/02/MG_8055.jpg

Organisation:

 Rifugio Re Carlo Alberto

Project description:

The project’s initiatives acknowledge, support, maintain, extend, demonstrate and ‘celebrate the possible’ in the lives of people with AD and offer them the opportunity to be advocates or ‘Ambassadors for Alzheimer’s’, creating new ambassadors in the local community.
The project includes the development of:
1. a home care service;
2. home-based training and support for caregivers;
3. a drop-in at a local coffee shop;
4. community and socio-pedagogical activities for people with and without AD within and outside the Refuge;
5. information and awareness events and training in the local community.

Contact:

www.diaconiavaldese.org/linea287/A28700.php progetti[at]diaconiavaldese.org

https://www.efid.info/wp-content/uploads/2016/03/Rifugio-Re-Carlo-Alberto-2.jpg
Netherlands

Organisation:

 Zorggroep Apeldoorn e.o.

Project description:

DemenTalent is looking for the talents of the young elderly people with dementia. The project strives to use those talents and give those talents a place within the communities, by giving the young elderly people with dementia a volunteer job in the community. A Radio Kootwijk was started in cooperation with Forestry Commission (Staatsbosbeheer).

Contact:

Daphne Mensink - daphne[at]anderszorgen.nl

https://www.efid.info/wp-content/uploads/2016/03/DemenTalent.jpg

Organisation:

 Fontys University of Applied Sciences (Stichting Fontys)

Project description:

Fontys University of Applied Sciences (Stichting Fontys) is a Dutch university that came into being in 1996 after a merger. Its mission is focused on providing education and conducting applied research. With the project “The Nursing Home of the Future is (a) Home”, the nursing home can be a place where people with dementia can live a good life, where people are recognized for who they are, and where visitors like to stop by. Through a systematic literature review and a large-scale field study, the phenomenon called ‘sense of home’ was investigated in four nursing homes in The Netherlands. Residents with dementia, members of staff and relatives participated in a photo production study and were interviewed about the visual material they provided. Because the home environment of people is often taken for granted, we invited people to take pictures of things that contribute (or don’t contribute) to a sense of home. A model of the experiential world of residents with dementia has been made, as well as an educational programme for nursing home practitioners.

Contact:

https://www.efid.info/wp-content/uploads/2018/02/MG_8391.jpg
Portugal

Organisation:

 Associação ProfundaMente

Project description:

Oficinas Terapêuticas is a project that began in 2004, in a private institution in Lisbon. The main project focuses on the idea that from the moment a diagnosis of dementia is made, the person in question usually loses his statute of being a person. This effect is also true for the person him- or herself, who develops a perception of low self-efficacy.
Re-perceiving self-efficacy is the aim of this project by providing more autonomy and developing old and new capacities, even when there is a cognitive compromise. The work of the project is carried out with the therapeutic intervention of a number of artists and artisans and with the collaboration of community institutions such as museums.

Contact:

http://www.profundamente.pt/

https://www.efid.info/wp-content/uploads/2018/02/MG_8391.jpg
UK

Organisation:

 EDUCATE (Early Dementia Users Cooperative Aiming To Educate)

Project description:

EDUCATE stands for Early Dementia Users Cooperative Aiming To Educate .The project is run by people with dementia who use their own experience to raise awareness about dementia. They give talks to businesses, community and faith groups, health and educational establishments about living with dementia. They help deliver training to staff supporting people with dementia and act as consultants in matters of dementia policy. The Coming Together project hopes to help people with dementia develop their own groups in surrounding boroughs.

Contact:

Mark Perry - markperry[at]nhs.net

https://www.efid.info/wp-content/uploads/2016/03/logoEDUCATE.jpg

Organisation:

 Alzheimer Scotland

Project description:

Shops, businesses and organisations are committed to learn about dementia and to do simple, practical things that make an enormous difference to people with dementia, so as to help them remain a part of their community. The project proactively engages with shops and businesses and opens not just doors, but hearts and minds, and raises awareness of dementia, its impact on people, families and carers and the importance of citizenship and community connections.

Contact:

www.alzscot.org

https://www.efid.info/wp-content/uploads/2016/03/Alzheimer-Scotland_Logo.jpg

Organisation:

 Bradford & District Older People’s Alliance (BOPA)

Project description:

Individuals with dementia from Black and Minority Ethnic (BME) populations are currently under-represented within services. This is due to lack of awareness among the BME population regarding the nature of dementia, and support and services available. BME communities are not homogeneous and so specialist knowledge is needed to work with ‘communities within communities’. The funding would enable us (a) to extend an ongoing project by delivering five further dementia awareness roadshows tailored to specific BME groups and (b) to produce a culturally appropriate DVD to raise awareness.

The project received a "special nomination" by EFID in 2014

Contact:

Carol Peltier - carol.peltier[at]ageukbradfordanddistrict.org.uk

https://www.efid.info/wp-content/uploads/2016/03/Age-UK-Bradford-and-District-Logo-RGB-copy.png

Organisation:

 YoungDementia UK

Project description:

YoungDementia UK offers integrated services to meet the complex needs of people with young onset dementia and their families from diagnosis to post-bereavement. A trained support worker partners the person with dementia, developing a trusting relationship, sharing chosen activities within their local community and ensuring the present if fully lived. Flexible support is tailored to the family’s circumstances, including information, practical and emotional guidance. To combat the isolation, a lively monthly Café encourages a welcoming community for all. Good practice is shared with other young onset dementia services through the website (www.youngdementiauk.org), and by modelling our approach to other organizations.

Contact:

www.youngdementiauk.org

https://www.efid.info/wp-content/uploads/2016/03/YoungDementia-UK.jpg

Organisation:

 University of Salford & University of Manchester

Project description:

The Neighbourhoods: Our People, Our Places project is part of an international research programme called Neighbourhoods and Dementia funded by the ESRC and NIHR (UK). The aim of the research project is to investigate: 1) how people living with dementia and their care partners experience their neighbourhoods and 2) the forms of support and help that are available (and not available) locally. With the support and input of people living with dementia we are developing an innovative dissemination and knowledge exchange programme to inform others of the findings from the research. By disseminating the findings in diverse and creative ways the work is informing public understandings of dementia as well as improving the everyday lives of people living with dementia.

Contact:

https://www.efid.info/wp-content/uploads/2018/02/MG_8367.jpg

Organisation:

 Upstream

Project description:

Upstream works with people living with dementia to understand their travel challenges and explore their ideas for more inclusive, enabling services. The project has developed a training and design programme for transport service providers based on these insights, to build staff awareness and a deeper understanding of living and travelling with dementia. The programme brings service provider staff together with people living with dementia to experience travel services together, to develop a shared understanding and to co-design solutions that reflect the needs of people travelling with dementia. The Upstream approach ensures that people living with dementia can participate throughout the process, leading to truly inclusive design.

Contact:

www.upstream.scot @upstreamscot

https://www.efid.info/wp-content/uploads/2018/02/MG_8257.jpg
Austria

Organisation:

 

Aktion Demenz Voralberg – Gesellschaft für Gesundheit und Pflege – gGmbH

Project description: 

Campaign Dementia aims to create conditions in Vorarlberg that enable people with dementia to participate in public and social life. We support communities that wish to create a friendlier environment for people with dementia and their families. 23 model communities (out of 96, and almost 60% of the inhabitants of Vorarlberg) have joined us since 2008. Countrywide, we also want to sensitize the general public and increase awareness of dementia by informing (e.g. through press relations and conferences, brochures, events, movies, art exhibitions, lessons in schools and kindergarten) and educating (e.g. neighbourhood assistants, policemen, salespeople, bus drivers, bank employees).

Contact:  

https://www.aktion-demenz.at/startseite/

https://www.efid.info/wp-content/uploads/2016/03/Aktion-Demenz_Austria2.jpg

Organisation:

 

Institute for Palliative Care and Organisational Ethics

Project description: 

The project “Dementia-friendly community pharmacy” aims at increasing quality of life for people with dementia and their caregivers by empowering community pharmacies to become more dementia-friendly through using their resources as local shops and by increasing knowledge and skills in person-centered care, and by reducing stigma through developing awareness-raising initiatives in local communities. Following principles of participatory research, involving caregivers and people with dementia is one major goal as is working in cooperation with Alzheimer Austria, a self help group, the Austrian Chamber of Pharmacists, and with other partners from palliative care and health promotion in Vienna and Lower Austria.

The project received a "special nomination" in 2014.

Contact:  

Petra Plunger petra.plunger[at]aau.at

https://www.efid.info/wp-content/uploads/2016/03/DFC-Pharmacy.jpg
Belgium

Organisation:

 

OCMW Kortrijk

Project description: 

The main purpose is to integrate elderly with dementia in the daily life and the local community. Through a Reminiscence Promenade the project is about creating reminiscence work, intergenerational work, improvement of accessibility and mobility and integration into village life (de-stigmatization).
The project consists of walks with references of events that happened in the past.

Contact:  

Jan Goddaer jan.goddaer[at]ocmwkortrijk.be

https://www.efid.info/wp-content/uploads/2016/03/Reminiscence-Promenade-photo.png

Organisation:

 

Het Ventiel

Project description: 

The objective of the project ‘Het Ventiel’, funded in 2015, is to encourage people with young onset dementia to break free from their isolation and engage in activities in a social context together with a buddy, who is also a volunteer. We look for new challenges and interesting alternatives to what is no longer possible. New challenges give new energy, confidence and self-esteem. People with young onset dementia can meet each other in an informal, casual atmosphere and find quality of life by discovering new activities. The condition has a significant financial impact on the families, so to make the project accessible to everyone, everything is free for the participants. The project also gives the partners of people with young onset dementia some breathing space and offers them the understanding of other partners going through the same experience.

Contact:  

http://www.hetventiel.be/ or www.facebook.com/Het-Ventiel-874598159247257

https://www.efid.info/wp-content/uploads/2018/02/MG_8086.jpg

Organisation:

 

HEKLA Local police force

Project description: 

This project is a bottom-up initiative that started in 2006 with the aim of dealing better with people with dementia who get lost in the community. The local police service covering 5 local authority areas (HEKLA) took responsibility for the project and brought together all the relevant community-based parties, including nursing homes and hospitals. They signed a joint protocol that aims to provide an efficient procedure for dealing with disappearances of people with dementia and youngsters.

As time is crucial in finding and returning these vulnerable people safely, the partners agreed to actively support professional communication with the local police service. This involves providing fast access to a well-documented file on the missing person, including personal details and information about the ‘last point seen’. Since the implementation of these optimized communication procedures, missing people are now located in less than 2 hours on average.
The project has already been adopted by eight other local police services in Belgium.

Contact:  

www.hekla.be/zdiensten/vermist/

https://www.efid.info/wp-content/uploads/2016/03/Hekla-3.jpg

Organisation:

 

Expertisecentrum Dementie Foton

Project description: 

A long-term awareness-building project in which all relevant partners, such as healthcare services, socio-cultural associations, local businesses (e.g. restaurants, shopkeepers), educational organizations, public and private services (e.g. police), are invited to make an active contribution, both individually and through partnerships, to creating a dementia-friendly community. The project aims to infiltrate the city and all its structures in order to create a climate where dementia is borne by the entire community. Examples of initiatives undertaken include the creation of a website, the wide distribution of a free ‘dementia guide’, organization of basic workshops on dementia and a protocol for finding missing persons.

Contact:  

www.familiezorg-wvl.be/foton.aspx

https://www.efid.info/wp-content/uploads/2016/03/DSC03909.jpg
Bulgaria

Organisation:

 

Foundation Compassion Alzheimer Bulgaria

Project description: 

The twinning programme of Alzheimer’s Disease International is a programme that provides support for core activities of ADI members. Thanks to 3-year twinning grants, Foundation Compassion Alzheimer Bulgaria achieved the following: 1) implementation of a strategic plan to develop the organization, 2) capacity building and training of the team and volunteers, 3) opening of a representation office in Sofia, 4) the design and provision of innovative social services for families of people with Alzheimer’s in Sofia and Varna (centres for support and psychological and legal consultations), 5) self-help groups, 6) an Alzheimer’s café, 7) annual information and lobbying campaigns.

Contact:  

compassion.alz[at]abv.bg

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Cyprus

Organisation:

 

Ske Simplegmatos Kouri Ksilourikou

Project description: 

There is an urgent need for improving the awareness and understanding of dementia across society in order to enhance the quality of life for people with dementia and their caregivers. The Cyprus organization has been struggling for several years to offer people with dementia an independent and active life. The project idea is to run an awareness-raising campaign in order to promote a dementia friendly society, to change public attitudes and practices in society.

Contact:  

skekouriksylourikou[at]hotmail.com

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France

Organisation:

 

Bistrot Mémoire, France

Project description: 

Bistrot Mémoire creates a special environment where people with dementia are able to express themselves whilst still being part of the community. The Jury was convinced by the approach and the mission of the project as well as by the success of the concept. It has spread rapidly throughout France without losing any of the project’s original quality or its mission.

The first Bistrot Mémoire was set up in Rennes in January 2004. Since then, the concept has been implemented in a further 41 communities in France. The idea was jointly developed by a group of institutions and volunteers. Later, a board of governors was appointed which included people with dementia as well as carers.
The Bistrot Mémoire is located in a popular bistrot in the city and welcomes people with dementia and their carers once a week. In Rennes, some 25 people attend each week, including both professionals and volunteers.
The Bistrot Mémoire is a place where people share feelings and experience and develop social ties. It is not an information centre, even though information is given.
The mission is to provide a pleasant location for people with dementia, develop tolerance, change the public’s views about dementia, support carers, prevent crises in the family network and change professional practice.

Contact:  

Isabelle Donnio. Email: isadonnio[at]numericable.fr

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Organisation:

 

France Alzheimer Vaucluse and Alzheimer Gesellschaft München e.V.

Project description: 

«Meeting without Boundaries» is a programme created in 2011 by 2 associations sharing the same ethics in dealing with people living with dementia: France Alzheimer Vaucluse (France) and Alzheimer Gesellschaft München e.V (Germany). A common pursuit: promoting a more inclusive society while discarding the prevailing negative stigma around dementia. The involvement of people living with dementia in all stages of the project’s elaboration and development was as high as that of relatives, volunteers and professionals. They shared their experience as individuals, as citizens and as European partners, which led to opening up the project to a European scale.

Contact:  

https://www.francealzheimer84.fr/ and https://www.agm-online.de/agm-home.html

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Germany

Organisation:

 

Leben mit Demenz – Alzheimergesellschaft Kreis Minden – Lübbecke e.V

Project description: 

In the past decade, various means of support have been established for people with dementia and their families in the region (e.g. specialized dementia service centres, respite care, day care, carer support groups). However, until this project was set up, no programmes existed explicitly for people in the early stages of dementia. The project consists of bi-weekly support groups, a sports programme and a monthly activity programme. In order to facilitate participation by those with dementia, a network of volunteers has been created. All the volunteers have either a professional background in dementia care or have been trained specifically for the task.

The jury selected this project for an award because it demonstrates an innovative approach in offering bi-weekly support and a sports programme for people in early-stage dementia. This kind of support programme with a network of volunteers is a very good example how we can improve the quality of life of people with dementia.

Contact:  

http://www.leben-mit-demenz.de/

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Organisation:

 

Nachbarschaftliche Unterstützung und Zeitvorsorge (NUZ) e.V.

Project description: 

The community is stimulated through public awareness, political activism. Regular meetings and joint actions are organized to enable a space for networking of the boroughs with the professional service providers. The aim of the project is to enable people with dementia to remain in their homes for as long as possible. People with dementia and their family carers are supported through neighborhood assistance, organized and implemented by the Association of NUZ. Moreover, training and support are provided to citizens who are willing to engage themselves in the neighborhood assistance on a voluntary basis and against time credit, especially for people with dementia.

Contact:  

Veronika Rist Grundner v.rist-grundner[at]allgaeu.org

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Organisation:

 

KONFETTI IM KOPF e.V.

Project description: 

The project develops events and activities to bring together people with and without dementia in their local community. In using music, visual arts, theatre and humor they create meeting spaces, where people connect and gain new perspectives through social contact and information. The project puts emphasis on building a network of local institutions dealing with dementia care. There is a plan to establish a Music & Arts Studio, where music and art therapists encourage people with and without dementia of all ages and background to experience the fun of creating and a gain of self-esteem.

Contact:  

www.konfetti-im-kopf.de

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Organisation:

 

Demenz Support Stuttgart (Dess)

Project description: 

Demenz Support Stuttgart (Dess) was established in 2002 with the intention to improve participation, self-determination and quality of life for people with dementia. The project “KuKuK-TV – Participation, Self-determination and quality of life” is a YouTube channel that gives voice to people living with dementia. It’s a platform that allows people with the condition to communicate their views on life and be active and creative on their own behalf. The programme features among other things reports, portraits, interviews and discussions.

Contact:  

More information on www.youtube.de/c/KuKuK-TV or www.kukuk-tv.de

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Organisation:

 

City of Arnsberg

Project description: 

The city’s staff unit “Future of Ageing” is coordinating and moderating the process of evolving Arnsberg towards a city of long and good life. The “Learn-Lab Dementia” is about establishing networks of “professionals” (medicine, nursing, etc) and civil society partners (kindergartens, schools, cultural and economical institutions, etc.) sharing the aim to improve the quality of life of people with dementia and their relatives.

Contact:  

Martin Polenz - m.polenz[at]arnsberg.de

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Organisation:

 

Generationen Treff Enger, Germany

Project description: 

Learning with and from each other in order to deal with each other is what some of the senior experts intended for this project. This guiding principle set out to strengthen the various networks in the town of Enger and to offer young and elderly people the possibility of taking part in social development. This project enables people with dementia to actively participate in life and to come into contact with people without dementia. Such a project was only possible in the town of Enger with the support of the local community, its shopkeepers and the local authority.

Dementia brings with it isolation and rejection. To remedy this, Generationen Treff Enger offers people with dementia the opportunity to meet with other members of the town through a range of activities. This initiative, whichappears so simple, draws its success from the involvement of many actors. It also stimulates profound changes in the way people with dementia are regarded

Contact:  

Günter Niermann Gniermann2[at]teleos-web.de

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Ireland

Organisation:

 

The Alzheimer Society of Ireland

Project description: 

The Alzheimer Society of Ireland works across the country in the heart of local communities providing dementia specific services and supports and advocating for the rights and needs of all people living with dementia and their carers. The Alzheimer Society of Ireland (ASI) established the Irish Dementia Working Group (IDWG) in early 2013. The IDWG is a national advocacy group made up of people with dementia. The IDWG wish to run an advocacy campaign in 2018 “Forget the Stigma of Dementia – Learn Listen Link”. The campaign is an opportunity for the IDWG to engage in local advocacy work through their national and regional groups, while also raising public awareness about dementia. The members of the IDWG will take responsibility for the planning, development, delivery and content of the campaign, ensuring the voice of people with dementia is at the centre.

Contact:  

http://www.alzheimer.ie

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Organisation:

 

Crystal Project

Project description: 

The aim of this project is to create a dementia friendly community in Mallow by providing support for staff of local businesses, schools, and healthcare professionals etc., to be aware of the needs of those affected by dementia. Through awareness campaigns, dementia champions support-programmes, and open access to the Memory Resource Room, the public will be better placed to understand the needs of those affected by dementia.

Contact:  

Cormac Sheehan cormac.sheehan[at]ucc.ie www.crystalproject.ie

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Organisation:

 

St James's Hospital

Project description: 

St James's Hospital in Dublin has been in existence since 1727. St James's Hospital, Dublin are involved in a large initiative 'DemPath' and within this undertook a project to improve the experiences of people with dementia within the hospital setting. The project “Wayfinding for people with dementia in a Dublin hospital” included making environment changes to make it more dementia-inclusive. This has covered a number of different areas including improved wayfinding. A wayfinding audit was undertaken involving people with dementia and all found the environment confusing but highlighted specific changes. Drawing on best practice examples environmental cues, including specially designed signage, have been introduced to help orientate people within a new building on the hospital campus. The aim is to extend this exemplar to key parts of the acute hospital.

Contact:  

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Italy

Organisation:

 

Associazione per la Ricerca Neurogenetica o.n.l.u.s.

Project description: 

Alzal House is a community day-care home for people with Alzheimer’s disease and their families, situated in Lamezia Terme, Calabria, in the very south of Italy. It opened in 2002 as the first adult care home in Lamezia Terme and today offers a wide range of activities such as handicrafts, self-management activities, organized day trips and short vacations, as well as group meetings and support for families.

The daily running of Alzal House is purposely shared with families, young civil service volunteers and students to encourage the dissemination of good social practices and assistance within the community. Encouraging the participation of people from all age groups fosters effective intergenerational communication – between young people, adults and the elderly – and narrows the generation gap, whilst ensuring stronger integration of the patient in the community.

Contact:  

http://www.arn.it/it/cosa-facciamo/casa-azal

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Organisation:

 

Associazione Novilunio

Project description: 

Founded in 2014, Novilunio is a non-profit association dedicated to inspiring a culture of positive change based on dignity and empowerment of individuals living with dementia and their carers. In 2017, Novilunio launched four online peer support groups for care partners of people with dementia (i.e. frontotemporal, Lewy body, Alzheimer’s and vascular). Encouraged by this positive experience, the association is now working on the launch of the first online network of peer support groups exclusively dedicated to Italians living with dementia. The group participants will convene from across the country in video chat rooms to exchange personal stories, tips and advice, as well as mutual support to better cope with their life changes and live a good quality of life beyond their diagnosis. To this end, the members of the first pilot group will meet on a weekly basis with the support of two Novilunio’s advisors who will facilitate their interactions, empower their viewpoints, and assist in case of any issue affecting their participation. The first pilot group will also define the guidelines that will be shaping the values and operations of future peer support groups dedicated to specific types of dementia, which will be launched starting from the second half of 2018.

Contact:  

https:/
ovilunio.net/

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Organisation:

 

Rifugio Re Carlo Alberto

Project description: 

The project’s initiatives acknowledge, support, maintain, extend, demonstrate and ‘celebrate the possible’ in the lives of people with AD and offer them the opportunity to be advocates or ‘Ambassadors for Alzheimer’s’, creating new ambassadors in the local community.
The project includes the development of:
1. a home care service;
2. home-based training and support for caregivers;
3. a drop-in at a local coffee shop;
4. community and socio-pedagogical activities for people with and without AD within and outside the Refuge;
5. information and awareness events and training in the local community.

Contact:  

www.diaconiavaldese.org/linea287/A28700.php progetti[at]diaconiavaldese.org

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Netherlands

Organisation:

 

Zorggroep Apeldoorn e.o.

Project description: 

DemenTalent is looking for the talents of the young elderly people with dementia. The project strives to use those talents and give those talents a place within the communities, by giving the young elderly people with dementia a volunteer job in the community. A Radio Kootwijk was started in cooperation with Forestry Commission (Staatsbosbeheer).

Contact:  

Daphne Mensink - daphne[at]anderszorgen.nl

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Organisation:

 

Fontys University of Applied Sciences (Stichting Fontys)

Project description: 

Fontys University of Applied Sciences (Stichting Fontys) is a Dutch university that came into being in 1996 after a merger. Its mission is focused on providing education and conducting applied research. With the project “The Nursing Home of the Future is (a) Home”, the nursing home can be a place where people with dementia can live a good life, where people are recognized for who they are, and where visitors like to stop by. Through a systematic literature review and a large-scale field study, the phenomenon called ‘sense of home’ was investigated in four nursing homes in The Netherlands. Residents with dementia, members of staff and relatives participated in a photo production study and were interviewed about the visual material they provided. Because the home environment of people is often taken for granted, we invited people to take pictures of things that contribute (or don’t contribute) to a sense of home. A model of the experiential world of residents with dementia has been made, as well as an educational programme for nursing home practitioners.

Contact:  

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Portugal

Organisation:

 

Associação ProfundaMente

Project description: 

Oficinas Terapêuticas is a project that began in 2004, in a private institution in Lisbon. The main project focuses on the idea that from the moment a diagnosis of dementia is made, the person in question usually loses his statute of being a person. This effect is also true for the person him- or herself, who develops a perception of low self-efficacy.
Re-perceiving self-efficacy is the aim of this project by providing more autonomy and developing old and new capacities, even when there is a cognitive compromise. The work of the project is carried out with the therapeutic intervention of a number of artists and artisans and with the collaboration of community institutions such as museums.

Contact:  

http://www.profundamente.pt/

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UK

Organisation:

 

EDUCATE (Early Dementia Users Cooperative Aiming To Educate)

Project description: 

EDUCATE stands for Early Dementia Users Cooperative Aiming To Educate .The project is run by people with dementia who use their own experience to raise awareness about dementia. They give talks to businesses, community and faith groups, health and educational establishments about living with dementia. They help deliver training to staff supporting people with dementia and act as consultants in matters of dementia policy. The Coming Together project hopes to help people with dementia develop their own groups in surrounding boroughs.

Contact:  

Mark Perry - markperry[at]nhs.net

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Organisation:

 

Alzheimer Scotland

Project description: 

Shops, businesses and organisations are committed to learn about dementia and to do simple, practical things that make an enormous difference to people with dementia, so as to help them remain a part of their community. The project proactively engages with shops and businesses and opens not just doors, but hearts and minds, and raises awareness of dementia, its impact on people, families and carers and the importance of citizenship and community connections.

Contact:  

www.alzscot.org

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Organisation:

 

Bradford & District Older People’s Alliance (BOPA)

Project description: 

Individuals with dementia from Black and Minority Ethnic (BME) populations are currently under-represented within services. This is due to lack of awareness among the BME population regarding the nature of dementia, and support and services available. BME communities are not homogeneous and so specialist knowledge is needed to work with ‘communities within communities’. The funding would enable us (a) to extend an ongoing project by delivering five further dementia awareness roadshows tailored to specific BME groups and (b) to produce a culturally appropriate DVD to raise awareness.

The project received a "special nomination" by EFID in 2014

Contact:  

Carol Peltier - carol.peltier[at]ageukbradfordanddistrict.org.uk

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Organisation:

 

YoungDementia UK

Project description: 

YoungDementia UK offers integrated services to meet the complex needs of people with young onset dementia and their families from diagnosis to post-bereavement. A trained support worker partners the person with dementia, developing a trusting relationship, sharing chosen activities within their local community and ensuring the present if fully lived. Flexible support is tailored to the family’s circumstances, including information, practical and emotional guidance. To combat the isolation, a lively monthly Café encourages a welcoming community for all. Good practice is shared with other young onset dementia services through the website (www.youngdementiauk.org), and by modelling our approach to other organizations.

Contact:  

www.youngdementiauk.org

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Organisation:

 

University of Salford & University of Manchester

Project description: 

The Neighbourhoods: Our People, Our Places project is part of an international research programme called Neighbourhoods and Dementia funded by the ESRC and NIHR (UK). The aim of the research project is to investigate: 1) how people living with dementia and their care partners experience their neighbourhoods and 2) the forms of support and help that are available (and not available) locally. With the support and input of people living with dementia we are developing an innovative dissemination and knowledge exchange programme to inform others of the findings from the research. By disseminating the findings in diverse and creative ways the work is informing public understandings of dementia as well as improving the everyday lives of people living with dementia.

Contact:  

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Organisation:

 

Upstream

Project description: 

Upstream works with people living with dementia to understand their travel challenges and explore their ideas for more inclusive, enabling services. The project has developed a training and design programme for transport service providers based on these insights, to build staff awareness and a deeper understanding of living and travelling with dementia. The programme brings service provider staff together with people living with dementia to experience travel services together, to develop a shared understanding and to co-design solutions that reflect the needs of people travelling with dementia. The Upstream approach ensures that people living with dementia can participate throughout the process, leading to truly inclusive design.

Contact:  

www.upstream.scot @upstreamscot

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Click on a country's pin to see more information about award-winning projects


EFID Awards 2017 "Valuing the expertise of people living with dementia"


In 2017 EFID launched a call for awards to prize notable initiatives that encourage meaningful participation of people living with dementia. The EFID Foundations announce the decision to award 12 initiatives across 10 European countries aimed at valuing the expertise of people living with dementia as an acknowledgement of their work in respecting the autonomy, dignity and right to self-determination of people living with dementia. The importance of listening to the voice of people living with dementia to value their expertise is prioritized in informing all of these initiatives. It is further acknowledged this may need to take different forms across a person’s journey but remains equally valuable throughout.

The 12 organisations have been selected by an independent Jury and honoured at the Award Ceremony in Sofia in January 2018, under the flagship of the Bulgarian Presidency of the EU.

Click on the link to download the list of EFID Awardees 2017.


EFID Capacity Strengthening Fund 2015


In 2015, EFID launched the 'Capacity Strengthening Fund' that offered support to the EFID awardees to develop joint projects and go-and-see visits. The proposals received were assessed by a group of people with dementia. Joint projects and study visits are currently ongoing. If you want to know more about the funded initiatives download the pdf below.

Capacity Strengthening Fund 2015: towards a network of practitioners for dementia-friendly communities

 

EFID Awards "Living well with Dementia in the Community" 2014


Drawing from the first edition, EFID launched a second call for awards "Living well with Dementia in the community" in 2014. 10 organisations received the EFID award and 2 organisations received a 'special nomination'.

Click here to download the full list of projects awarded in 2012 and 2014.
Click here to see the pictures of the ceremony held in Brussels.

 

EFID Awards "Living well with Dementia in the Community" 2012


The EFID awards “Living well with Dementia in the Community” launched in 2012 and 2014 supported 20 projects in 11 European countries that encouraged the dissemination of good practice and gave people with dementia a stronger voice in their communities.

Click here to see the pictures of the ceremony held in Brussels.

Download the leaflet to read more about the 10 projects that won an EFID Award in 2012. The leaflet is available in the following languages:
English
Polish
Czeck
Slovak
Romanian
Hungarian
Bulgarian